Not a Warrior just Me!
Thought I’d write this post for anyone who is just newly diagnosed with a chronic health condition or for those affected by it.
As you will have read in my story I was diagnosed with an Autoimmune disease 11 years ago. I was living a normal life working and caring for my family, 2 children, husband and 2 dogs. Literally one morning I woke up and could hardly move out of bed. I was dizzy, felt as though I had the flu, I couldn’t even walk up and down the stairs in my house. That was my first set of symptoms that led to the first diagnosis. I attended a specialist and was appropriately medicated. It didn’t stop there. I developed other symptoms which ranged from numbness, to paralysis down one side of my body, extreme pain where my children couldn’t even cuddle me . That’s when my world changed. After months of further medical tests and hospital visits they diagnosed me with Fibromyalgia . I battled on developing new symptoms which kept me bed ridden. I was in so much pain from the top of my scalp to the tip of my toes. This led to me being medically retired from employment at the age of 37.
Not exactly how I envisaged my life. I was always a really active person, not sporty just a busy mum! So to go from that to lying flat on my back 24/7 was shocking. It had a huge impact on my family life. My husband was so understanding but he found it hard. We went from a couple who socialized frequently to nothing. It’s hard for everyone!
The medication is the worse part. I was on a concoction of 23 pills a day. Zombie comes to mind. If I can advice anyone in my position and speaking from experience, try not to take too many pills. They don’t take away the pain, they tend to just take the edge off of the pain. Yes that’s great but it brings a wealth of other problems and the odd side effects.
Try to get up and move around every day. If you stay in bed you’ll just cease up. It’ll help your mood. Change your diet. Cut out sugar, that’s the killer. Stop drinking diet soda if you can, replace with plenty water. Try to eliminate gluten. These things can cause inflammation in the body which won’t help your joint pain.
I think the hardest thing is trying to remain positive. I know I used to look at people and get angry. Why did I end up like this? Why me? I looked at joggers and wish I could run like them. Truth is, even if I was 100% healthy I probably wouldn’t be a keen runner. It’s having the option that mattered to me.
It’s a long road but I’m still here on life’s path and for that I am so thankful. I have come to terms with my health conditions and have taught myself how to manage the pain/ symptoms associated with these debilitating diseases. It’s not the end of the world, you just have to tweek things to suit your abilities. You’ll find it’ll open up new things that you previously might not have been interested in.
I am not a ‘Chronic pain’ or ‘Fibromyalgia’ Warrior. I am just me. I will never let my illness define who I am and how people refer to me. I am ME.
Thanks for reading guys!
Grab nature by the heals and have an amazing day!